For Individuals

If you find yourself studying the science of your rare disease as if you'll be taking an exam, you don't have to do it alone. Schedule an appointment and let's find and digest the best resources possible for your particular interest. If you're new to your diagnosis and are overwhelmed by information, let us help point you to the resources you're looking for. If you've exhausted the beginner's level content about your disease but are intimidated by the jargon in deeper science, let's dive in together! If you're looking for insights in the peer-reviewed science about or tangential to your disease(s) to then take to your trained medical providers, we can help you find and critically evaluate these papers. To build a more inclusive program, we have a 30% pro bono commitment for work with individuals.

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For Patient Organizations

We can provide targeted tutoring for your patient population, explore the scientific landscape looking for ways to fuel the research forward, or simply execute on an initiative you already envision. Understanding that each patient organization has a different story and that many are run entirely by volunteers, we have a 30% pro bono commitment for this work as well.

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For Companies

For companies who align with our mission, we can provide literature reviews, white papers, and/or scientific consulting. 

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For Whole Communities

We launch specific initiatives to address challenges and gaps in a field in a highly collaborative fashion. 

At the end of Q1 we launched the R69 Initiative www.R69initiative.org to reduce the duration of the diagnostic odyssey for persons living with a rare disease. Stay tuned for 2 more initiatives that will be launching shortly!